Fondation Pierre Fabre

Towards understanding the route and dynamics of Leprosy transmission in India

Main beneficiary country:

About the sponsor

Society for Health Information Systems Programmes, India, (HISP India)

The Society for Health Information Systems Programmes, India (HISP India) is a registered not for profit society and a node in the global HISP network and active contributor to the DHIS community. With a base in India, HISP India is supporting multiple regional (South Asia) implementations of DHIS2, while strongly embedded in supporting health information systems in the Indian States and South East Asia Region.

HISP India has a primary focus on strengthening public health systems in India, and as an active member of the global HISP network has also worked in national health systems strengthening in various countries in the region, including Nepal, Bangladesh, Bhutan, Sri Lanka, Indonesia, and Tajikistan. HISP India has in collaborative MoU with the University of Oslo (UiO) which enables collaboration on DHIS2 based HMIS implementation projects in countries such as Nepal, Indonesia, and is currently working with UiO, PATH Zambia, Plan International and ICMR (Indian Council of Medical research) on many research projects including National Leprosy Monitoring system. HISP India is currently working with WHO India on projects relating to LF and Leprosy surveillance through SMS reporting.

HISP India team is part of the DHIS2 implementer group who are being trained on the WHO Health App which contains the WHO defined applications on TB program standard aggregate and tracker based data collection programs, Immunization registry, Malaria standard aggregate and tracker programs, and Data management systems for Cause of Death and HIV.

Sector: Organizational: Communities, public authorities, NGOs, associations, foundations, etc.

Country of origin: India

Contact the sponsor

The organisation has:

Full-Time Equivalent
Service provider

Initiative overview

Healthcare themes targeted

  • Infectious diseases

Stage of development:

  • Routine project/operational

Area where initiative is utilised

  • National (in one country only)

Initiative start date

  • 11/07/2018


Financing method

  • No Funding so far

Economic model(s)

  • Call for proposals (Project Cost), Fundings

About the initiative

Leprosy, a chronic mycobacterial infection caused by Mycobacterium leprae, is an infectious disease that has ravaged human societies throughout millennia. This pathogen causes disfiguring cutaneous lesions, peripheral nerve injury, osteoarticular deformity, limb loss and dysfunction, blindness and stigma. It affects the skin and peripheral nerves with a wide range of clinical manifestations of long-term nature, including permanent physical disability.

Even though, the Indian Ministry of Health launched The National Leprosy Eradication Programme (NLEP) in 1983, with government funds, India has high leprosy incidence and in 2016 contributed to about 63% of the global burden. Annual New Case Detection Rate (ANCDR) is 10.17 per 100,000 populations.

Despite ongoing efforts in interrupting leprosy transmission, large numbers of new cases are persistently identified in many endemic areas. Moreover, at the time of diagnosis, most newly identified cases have a considerable neurologic disability. Many challenges remain in our understanding of the epidemiology of leprosy including: the precise mode and route of transmission; the socioeconomic, environmental, and behavioral factors that promote its transmission; strategies to achieve early diagnosis and prevent neurologic impairment to reduce the large burden of disability among newly identified cases and among those who endure long-term disability despite completing multidrug therapy.

Historically, the surveillance system has been paper-based or based on Excel sheets. HISP India’s objective is to strengthen and modernize the surveillance system. This requires a flexible information system responsive to the needs of NLEP towards understanding the dynamics in the disease transmission.

The current application developed for NLEP captures case-based data which can be aggregated at various levels i.e.: District, State, and National levels real time for analysis by the national team and to make effective policy decisions. The current leprosy information system captures demographic details of the patient as well as the history of migration which will come in handy in understanding the dynamics of the disease. The application allows classification of the case into PB and MB case based on the symptoms entered (i.e. peripheral nerves involved, nodules, etc.). The details of contact tracing, antibiotics given, and the status of treatment are being entered for all the patients. All the states are currently entering data at the Block level since April 2018.

Fields of application:

Information, education and communication for behaviour change (IEC) - Patient monitoring and medical data - Medical Informatics

Target audience

  • Healthcare professionals and structures (hospitals, healthcare centres/clinics, health networks)
  • Entire population
  • Sick people
  • Dependents/persons with disabilities
  • Patient family/entourage

Initiative objectives

  • Decreased mortality
  • Decreased morbidity
  • Reduced suffering
  • Improved treatment

Key figures

3275 Number of beneficiaries since launch

250 Number of users per Week

Materials used

  • Computer

Technologies used

  • Mobile telecommunications (without data connection)
  • Internet
  • Geolocation

Offline use


Open Source


Open Data


Independent evaluation

auto-evaluated or evaluated by a related organization


University of Oslo

Academic entities: Universities, research laboratories, etc.

Indian Council of Medical Research

Academic entities: Universities, research laboratories, etc.

World Health Organisation

Organizational: Communities, public authorities, NGOs, associations, foundations, etc.