Digital application to assist in the monitoring and management of sickle cell disease
Main beneficiary country:Congo - Kinshasa
Genity Sarlu
Genity Sarlu is a start-up dedicated to providing innovative solutions to social problems affecting Congolese and Africans in areas such as health and communication.
Sector: Industrial: Startups, enterprises, etc.
Country of origin: Congo - Kinshasa
Healthcare themes targeted
Stage of development:
Area where initiative is utilised
Initiative start date
Financing method
Economic model(s)
The first genetic disease in the world, Sickle Cell Disease is characterised as a rare disease or one that people are unaware of. The DRC [Democratic Republic of Congo] is the 3rd country in the world and the 2nd in Africa to bear the socio-economic burden of this disease.
In the DRC the fight against this disease is characterised by: the difficulty of obtaining precise figures; the absence of large-scale action undertaken by the State; the high cost of care ($1,000 to $2,000/disease/year); the lack of trained health personnel and infrastructures lacking the specificities of sickle cell disease (transfusion related, nutritional, surgical and orthopaedic needs, etc.); and a population that is often poorly informed.
Anemiapp therefore aims to solve the problem of caring for sickle cell patients in the city of Kinshasa.
This application brings patients in Kinshasa suffering from sickle cell disease closer to their caregivers in order to monitor their health. It facilitates the provision of treatment and access to health care. Anemiapp is also intended to prevent sickle cell disease through mobile phones, with the patient receiving notifications on health advice and how to avoid attacks.
This application is innovative because it allows a patient with sickle cell disease living in Kinshasa to use their phone to search for places where they can find their treatments without having to travel (blood bank, medicines, etc.) as well as a doctor near to where they live. A pregnant woman with sickle cell disease, a population at risk, 20 to 30% of them dying before or during childbirth, can find a specialist gynaecologist to ensure they are well supported. Young people in Kinshasa can use the Anemiapp application to find out where to get tested in order to avoid giving birth to a child who will also suffer from sickle cell disease.
For this purpose, the Anemiapp application offers the following services:
Anemiapp is therefore intended for:
Telemedicine (remote diagnosis and consultations) - Information, education and communication for behaviour change (IEC) - Patient monitoring and medical data
302 Number of beneficiaries since launch
264 Number of users per Day
Yes
No
No
Yes
evaluated independently
Health: Healthcare professionals and structures
Organizational: Communities, public authorities, NGOs, associations, foundations, etc.
Industrial: Startups, enterprises, etc.
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